Page updated Feb 17, 2014

The most comprehensive site
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Congenital heart defects are responsible for more deaths in the first year of life than any other birth defects, the National Institutes of Health reports. This site is devoted to providing information to members of the world-wide congenital heart defect (CHD) community.

We do not provide medical advice, but we do have information which can supplement what doctors and other professionals provide.

Whether you are looking for definitions of medical terms, hospitals caring for people with CHDs, other people with whom you can network and share experiences, links to support groups, articles regarding CHDs, or resources for the CHD community, you have come to the right place!






Keeping Heart to Heart with Anna Beating

Anna has touched so many CHD and HLHS friends and family through her talk radio show, but now she needs our help to keep it beating.

Anna Jaworski is married and the mom of two boys. Her youngest son was born with a congenital heart defect and with that she has become an advocate for other children and their families with similar illness. This heart mom has been hard at work reaching out to other heart moms and kids to provide a community of support through her non-profit Hearts Unite the Globe, sales of her books from Baby Hearts Press and her Heart to Heart with Anna radio show on VoiceAmerica. Last month Anna had over 5,000 listeners and over 30 guests call in offering help, support, guidance, experiences and questions for the congenital heart communities. However, it is not limited to the CHD community, it has "broader appeal to any community dealing with chronic illness".

VoiceAmerica, the company that produces and hosts Anna's radio show, is quite happy with the pilot show and has offered a one-year contract at half the cost. That means Anna will be able to produce another 52 episodes this year. Lets show her some love and support so she can continue to keep touching the lives of this vast community.

To donate or become a member of the fundraising team, show your support by visiting our fundraiser at:

GiveForward


To learn more about the show, listen to past episodes, or for information on how to become a guest or suggest future topics visit HeartToHeartWithAnna.com





Click on one of the links below to go to the section you are interested in.

Congenital Heart Defect Information

Descriptions of
Congenital Heart Defects
A listing of Congenital Heart Defects and Syndromes, and their descriptions in easy to understand language.
Congenital Heart Defect Statistics A page of CHD statistics and basic information.
Medical Term Definitions Definitions of some of the medical terms commonly used in the CHD community.
Questions and Comments
Calendar of Events
New Events Posted Regularly - Fundraisers, Conferences, Family-to-Family get togethers, and much more!
Check out what's going on this month!
Events related to CHDs... meetings, seminars, retreats, picnics, conferences. Want your event listed? Email us!

Congenital Heart Defect Resources

Books and Resources An extensive listing of books and resources available to the CHD community.
Articles in the news about CHDs, Heart Surgery, etc. Newspaper and magazine links for articles of interest to the CHD community including: Adults with CHDs, CHD Research, Heart Procedures/Surgeries/Devices and much more!
CHD Community Members' Contact Information Ever wish you could talk to another person dealing with CHD issues? Here is a list of members of the world-wide CHD community with ICQ, IM, email addresses and homepage URLs listed. This is a great way to network with other CHD community members.
CHD Message Board Have a question? Post it here!
Hospitals performing Cardiovascular Surgery World-wide listing of Hospitals that perform Pediatric Heart Surgery
Congenital Heart Defect Internet Resources An extensive listing of Internet websites providing helpful information for the CHD community, including :

Congenital Heart Defect Awareness Information and Legislation

CHD Awareness By spreading CHD Awareness, we will heighten the public's understanding of the need for research and we will enhance people's opportunities to receive the help they so desperately need. Anna lists seven ways you can help raise awareness of CHDs.

Here is a page with links to each state's legislature home page, where you can search for current legislation relating to CHD issues.

CHD Quilt Project This is a special project designed to honor and remember people born with CHDs. Each quilt features 42 people born with CHDs. The quilts are being featured at events all over the United States. Click here to check out the Blog about the quilt. See pictures of some of the quilts and read about what's new with the quilt project.
American Heart Association's Congenital Heart Defect Endowments Are you wondering what the American Heart Association is doing for the CHD Community? Click here to read all about it!

Founders and Advisory Board Who created this site, and why did we do it?


Heart Health
medic8 approved

Adding Wisdom Award


DISCLAIMER : The material on this website is intended to provide information, support, encouragement, and links for further research to the reader about certain medical conditions. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. These pages are for informational purposes only and should not be construed as medical advice for any specific facts or circumstances. Although we try to keep these pages current and accurate, you should not rely on this information or its applicability to any specific circumstances without first consulting your primary care physician or a specialist physician in the particular area of your concern.
If you believe you, your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

Privacy
CongenitalHeartDefects.com is committed to safeguarding your privacy on our website. This website site provides cardiology related health information and resources. We understand that health is a personal and private matter, and we do not want you to have to be concerned about the security or use of any information you provide to us. We will never disclose personally identifiable information, including your e-mail address, to anyone without your permission.

Public Forums
This site may make chat rooms, forums, message boards, and/or news groups available to the public. Please remember that any information that is disclosed in these areas becomes public information and you should exercise caution when deciding to disclose any personal information.


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