Site updated Tuesday, March 11, 2008

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Descriptions of CHDs

Congenital Heart Defect Statistics

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News Articles relating to Congenital Heart Disease

Adults with CHDs  |  Advocacy (and Need for Advocacy)  |  CHD Research  |  Drugs Taken For CHDs  |  Education  |  Genetics  |  Healthcare Reform/Changes  |  Heart Procedures/Surgeries/Devices  |  HLHS Information  |  Other Procedures, including Dentistry and Piercing  |  Oral Aversion and Feeding Issues  |  Pregnancy  |  Role of Doctor  |  Speech and Language Disorders  |  Transplantation


(note: Some of these articles are available on MedScape, a free service. You must register once and get a username and password to read the articles hosted at this site.)

Adults and Teens with CHDs

Thousands Of Survivors Of Congenital Heart Defects Facing Specialist Shortage   20 Feb 2008

New website gives young hearts a boost   Dec 7 2007

Congenital Heart Disease in Adults— First of Two Parts   New England Journal of Medicine 1-27-2000

Congenital Heart Disease in Adults— Second of Two Parts    2-3-2000

Early heart disease in parents linked to thicker artery walls in offspring   7-23-05

Heart patient takes it one day at a time - turning 18 brings new concerns for P.A. resident facing lifetime of treatments   7-24-02

Pregnancy safe for some women with heart disorder   02-Dec-02

Advocacy (and Need for Advocacy)

New book gives a human face to children with congenital heart disease   Feb. 21, 2008

A message from the heart
A local family shares what they have learned about and tips for dealing with heart defects  Feb. 12, 2008

Understanding Research: Top Ten Tips for Advocates and Policymakers - January 2002

Heart defect patients have gaps in knowledge   18-Jun-2001

Maternal Concerns Need To Be Addressed When Doctors Treat Children With Congestive Heart Disease - 08/13/2001

Patients' Poor Knowledge of Heart Conditions May Have Harmful Consequences - 06/14/2001

CHD Research, Medical Studies and Trials

Lung damage in babies with congenital heart disease under study   10-Mar-2008

Mary Bridge and Tacoma General Team Up to Screen for Congenital Heart Defects   Feb 19, 2008
Babies born at Tacoma Genera Hospital to be First in the State Screened before Discharge

Cord Blood Stem Cells And Cardiovascular Disease   20 Feb 2008

Researchers Seek To Mend Broken Hearts   Feb 13, 2008
Chicken embryos may hold key to heart defects

Science stacks up for B vitamins and pregnancy   25/01/2008
A combination of low vitamin B12 levels and certain genotypes for the methionine synthase reductase (MTRR) and transcobalamin II (TC) genes were found to increase the risk of CHD by about 35 and 100 per cent, respectively, report the researchers in the journal Molecular Genetics and Metabolism.

A living, beating heart -- grown in a jar    January 13, 2008 University of Minnesota researchers grew a rat heart in a landmark effort that may foreshadow the ability to grow tissue to repair organs, or even create organs for transplant.

Research Evaluates Newborn Screening Test, UK   18 Dec 2007

Secrets of the horse's heart - Doctor seeks clues to human defects   4 Dec 2007

Lauded UM scientist searching for cardiovascular secrets   4 Dec 2007

Potential link between congenital heart anomaly and migraines   22-Nov-2007

Rosetta Genomics and NYU School of Medicine Expand Their microRNA-Based Collaboration to Include Cardiovascular Indications - Will Screen for microRNA Biomarkers and Drug Targets for Congenital Heart Defects    Nov 20 2007

New Research Shows Masimo Perfusion Index (PI) Effective in the Noninvasive Detection of Congenital Heart Defects (CHD) in Newborns   November 14, 2007

Amniotic Stem Cells Offer Hope Against Congenital Heart Defects    Nov. 14, 2006

Scientists uncover the mechanism behind arrhythmia deaths   2 Dec 2005

Prolonged Atrial Fibrillation Increases Stroke Risk in Bradycardia Patients   Nov 22 2005

Real-time MRI helps doctors assess beating heart in fetus
Advanced imaging improves tools for evaluating heart disease before birth  29-Sep-2005

Healing touch, music, aids heart surgery patients   July 2005

Engineered blood vessels prove durable and clot resistant   18-Nov-2002

Cells engineered into blood vessels, pacemakers   19-Nov-2002

Ultrasound test can ID heart condition early   4-June-2002

Doppler test detects those with gene for early heart enlargement risk   5-June-2002

Doctors test method to cut brain damage in babies   1-Feb-2002

US child heart defect deaths falling: study   15-May-2001

More babies survive heart surgery than ever before   24-Nov-2000

Tetralogy of Fallot in Tigers, Too   7-Dec-2000

Research Team to Tackle Congenital Heart Disease Where It Starts - February 2, 1999

Drugs

New Guidelines Urge Heart Tests Before Kids Take ADHD Drugs   April 22, 2008

Antibiotic Prophylaxis Guidelines Published in the Journal of The ADA April 2007

ADHD drugs: Cardiac toxicity low, but emergency room visits up. Medscape Medical News; December 18, 2007.

Ginger Prevents Postoperative Nausea and Vomiting    - Jan 16, 2006

Scientists at Yale University School of Medicine recently issued a report entitled "Phenylpropanolamine & Risk of Hemorrhagic Stroke: Final Report of the Hemorrhagic Stroke Project." This study reports that taking PPA increases the risk of hemorrhagic stroke (bleeding into the brain or into tissue surrounding the brain) in women. Men may also be at risk. Although the risk of hemorrhagic stroke is very low, FDA recommends that consumers not use any products that contain PPA. Many cold medicines contain PPA. On December 22, 2005 the FDA issued a notice of proposed rulemaking (notice) for over-the-counter (OTC) nasal decongestant and weight control products containing phenylpropanoloamine preparations. From the FDA site.

US panel urges heart risk warning on ADHD drugs    - Feb. 10, 2006

Pediatric Dosage Labeling Changes as of November 23, 2005 From the FDA site.

Progression of aortic stenosis is slowed by cholesterol-reducing drug    - 11/27/2002

Plan to end pediatric drug trials draws fire    - 04/02/2002

Warfarin Treatment In Children Undergoing Cardiac Surgery May Impair Bone Metabolism   - 07/11/2001

Ibuprofen treats heart problem in preemies   6-Sep-2000

Education

For children with heart disease, a risk of attention and behavior problems   7-Apr-2008

Principles for Reauthorizing Individuals with Disabilities Education Act (IDEA)

Genetics

Marfan's Syndrome and Related Disorders — More Tightly Connected Than We Thought - 8/24/2006

Long QT Syndrome - More Common Than You Thought - 03/10/2003

Long QT Syndrome Am Heart J 143(1):7-14, 2002.

Gene for birth defect syndrome found   26-Feb-2001

Genetics linked with sudden cardiac death from heart disease   24-May-2001

Gene links heart rhythm disturbance to SIDS   26-Jul-2000

Healthcare Reform/Changes

For babies with heart defects, death risk is far lower at most experienced hospitals - First national study of death risks from congenital heart repair suggests that the trickiest cases should go to regional centers    17-Dec-2007

Vasila, Afghani Girl With Heart Defect, to Get Treatment Through Project Kids Worldwide, But Many More Still Need Help   March 7, 2005

Report urges NHS reform in wake of Bristol deaths   19-Jul-2001

Heart Procedures/Surgeries/Devices

Pediatric Heart Surgery First   Monday March 10, 2008
Nurses at Miami Children’s Hospital’s Congenital Heart Institute helped ensure a good outcome for the recipient of the world’s first non-surgical tricuspid valve replacement, placed in January in the facility’s cardiac catheterization lab.

New technique replaces open-heart surgery for children &nbbsp; Feb 19, 2008

AGA Medical Corporation Receives European CE Mark Approval for the AMPLATZER(R) Duct Occluder II   2/11/08

CryoLife Receives FDA 510(k) Clearance for SynerGraft(R) Processed Human Pulmonary Heart Valves    February 07, 2008

Biodegradable film reduces surgical scarring   29-Jan-2008
A new, biodegradable film designed to reduce the severity of scarring following open heart surgery in young children appears to be safe and effective, according to researchers attending the annual meeting of the Society of Thoracic Surgeons in Ft. Lauderdale.

Percutaneous Pulmonary Stents to Remedy Stenosis in Repaired Valves    Jan 28 2008
Repaired congenital heart defects that later develop a stenosis may be rejuvenated with an investigational biological valve that can be deployed percutaneously.

Revolutionary Heart Procedure Gives Boy 2nd Chance   01/18/08

Evolution in Interventional Cardiology
With timely detection, treatment for heart disorders is now possible without surgical opening of the heart   01/16/08

EVMS doctor develops software to detect fetal heart defects   Dec 7, 2007

The Development of Prosthetic Heart Valves — Lessons in Form and Function - 10-4-2007

Blood-incompatible Infant Heart Transplants Safe, Study Suggests   ScienceDaily (Nov. 6, 2007)

Heart assist device helps kids awaiting transplant   May 16, 2006

Atrial fibrillation treated by magnetically guided catheter   Apr 07

Delayed Defibrillation Testing in Patients Implanted with Biventricular ICD (CRT-D) A Reliable and Safe Approach   01/03/2006

Advanced ICD Troubleshooting: Part I   01/09/2006

First-Line Treatment of Atrial Fibrillation: Is Radiofrequency Ablation Ready for Prime Time?   01/11/2006

Jersey Life - Happy hearts: A Middletown couple's son is now a bouncing toddler after surviving surgery for a congenital heart defect   01/15/06

Resynchronization Therapy May Benefit Congenital Heart Disease Patients   Dec 27

PediPump may help kids with heart failure

Implantable Monitor Improves Outcomes Among Heart Failure Patients   Nov. 22, 2005

Atrial Fibrillation Ablation: Techniques and Results   09/27/2005

Complex Heart Surgery at Lucile Packard Children's Hospital Saves Life of Tiny Preemie
Infant originally given zero chance of survival now has normal life expectancy   February 16, 2005

The Berlin Heart

Study Shows Bedside Blood Testing Lowers Infant Mortality By Up To 74% Following Congenital Heart Surgery   6/12/03

Medscape Resource Center - Role of Home Defibrilators in Sudden Cardiac Arrest   Mar 11 2003

Tilt-Table Test, Electrophysiologic Studies Usually Pinpoint Cause of Syncope   Mar 11 2003

FDA APPROVES HEART ASSIST PUMP FOR PERMANENT USE   6-Nov-2002

Texas Children's Eliminates Some Open-Heart Surgeries With New FDA-Approved Device   05/15/2002

Babies can survive mismatched heart transplant   16-Mar-2001

Is Arrhythmia Detection by Automatic External Defibrillator Accurate for Children?    (Circulation. 2001;103:2483.)

Children get too much radiation from CT scans   23-Jan-2001

New procedure offers hope in preventing severe heart defect - Feb 25 2002

Quality of Life Among Young Patients After Valve Replacement   5-Dec-2000

Surgery for heart defect may not help child's IQ   24-May-2001

Two devices approved for treating heart defects   7-Dec-2001

Survival Rates Are Improving for Infant Heart Surgery   17-Nov-2000

Inhaled nitric oxide might prevent pulmonary vascular disease in infants   21-Jul-2000

HLHS Information

Surgical outcome for patients with the aortic atresia-mitral stenosis variant of hypoplastic left heart syndrome    American Association for Thoracic Surgery, 2008

Ethical Principles and Parental Choice: Treatment Options for Neonates With Hypoplastic Left Heart Syndrome - 03/07/2003

New techniques rebuild tiny heart - Mar 27, 2002

Prenatal diagnosis helps determine HLHS babies with best prognosis   19-Oct-2000

Other Procedures, including Dentistry, Piercing and Organ Donation

Antibiotic Prophylaxis Guidelines Published in the Journal of The ADA April 2007

Tattooing Could Prove Risky for Patients With Congenital Heart Disease   Nov 10, 2007

Report of a National Conference on Donation After Cardiac Death   01/31/2006

Teen gets piercing-related heart infection   March 11 2003

The Nuss Procedure for Pectus Excavatum - a collection of resources that explains the Nuss Procedure to correct pectus excavatum, also known as sunken or funnel chest.

Oral Aversion and Feeding Issues

Cranky, Undernourished Infants: Are their parents to blame? - Not according to Dr. Maria Ramsay at the MCH Failure to Thrive/Feeding Disorders Clinic    March, 2002

Children with Feeding Difficulties Conference    March, 2001

Pregnancy

Smoking Early in Pregnancy Raises Risks of Heart Defects in Newborns   :Apr 7, 2008

Specialized Care Essential for Women With Congenital Heart Disease Undergoing Pregnancy   Wednesday, Feb. 27 2008

UTIs during pregnancy raise baby's heart risk   06 Nov 07

Pregnancy Risks Increased in Women Treated for Congenital Heart Defect   Jan 12, 2006

Paroxetine Exposure in Early Pregnancy Linked to Risk of Defects   Dec. 8, 2005

Pregnancy Well Tolerated by Most After Aortic Coarctation Repair   Nov 23 2005

Early pregnancy fevers up risk of heart defects   11-Sep-2001

Mom's weight linked to heart risk in baby   Jul-2001

Baby at greater risk of congenital heart disease if mother has it   30-May-2001

Eating disorders can complicate pregnancy   12-Sep-2001

Famine in early pregnancy raises child's heart risk   22-Nov-2000

Role of Doctor

General Practitioner's Role Vital In Pediatric Heart Disease   05/26/2000

Speech and Language Disorders

Evidence Report on Criteria for Determining Disability in Speech-Language Disorders   January 2002

Transplantation

Loma Linda University International Heart Institute: Leading the world in infant heart transplantation


DISCLAIMER : The material on this website is intended to provide information, support, encouragement, and links for further research to the reader about certain medical conditions. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. These pages are for informational purposes only and should not be construed as medical advice for any specific facts or circumstances. Although we try to keep these pages current and accurate, you should not rely on this information or its applicability to any specific circumstances without first consulting your primary care physician or a specialist physician in the particular area of your concern.

If you believe you, your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.


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