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Books about Congenital Heart Defects
American Heart Association Web site at www.channing-bete.com.
Online source for AHA training and education materials
See also:
Laerdal Lifesaving Products Catalog
Available from NICU INK Book Publishers
Newborn Intensive Care: What Every Parent Needs To Know
Parents
find this book especially helpful during the NICU experience.
Another book for parents is
Early Passage: A Journal for Parents of Premies
.
This
is a self-guided journal for parents to record information, thoughts, feelings
and
the like. It's beautifully done by the mom of a premie.
Available from SeaHorse Press
Kara Mia
Announcing a new book about one family's struggle to cope
with the anoxic brain injury that resulted from Long QT syndrome in their
teenage daughter. Kara Mia is the first book to tell the dramatic tale of this
insidious cause of Sudden Arrhythmia Death syndrome. Authoritatively written by
Kara's mother, an operating room nurse, and Kara's physician, a pediatric
neurologist, the book covers her story from cardiac arrest on the high school
track through her ongoing rehabilitation.
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KIDS WITH HEART PARENT INFORMATION PACKET
Contains a variety of articles--everything from coping/ emotional issues of
having a heart child, to the physical things you need to know about heart
surgery, and preparing yourself and your child for the surgery itself--see
Table of Contents on back and on webpage
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HEART DEFECTS IN CHILDREN: What Every Parent Should Know
This book is a definite must for all parents of children with any kind of
congenital heart defect. It explains details of the specific congenital
heart defects, infections of the heart and its valves, tests that may be
required to help your child, questions to ask your child's doctor, how to
help you and your child if surgery is required, commonly used medications,
and future risk factors--this part has never been dealt with in any other
books. Copyright 1999
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HEART OF A CHILD
This book is a must for parents of children with
complex/severe congenital heart defects. This book deals with physical,
social, and emotional aspects of having a child with a heart defect. It is
extremely well done and easy to understand because it is written for parents.
Copyright 1992
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TO MEND A BROKEN HEART
This book is designed to prepare parents facing their child's first heart
surgery and explains everything from the types of heart surgery, types of
incisions, what to expect in the PICU, etc. A very good reference for parents
facing this experience for the first time.
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EVERY PARENT'S NIGHTMARE
This book deals with a family's struggles to find help for their son, whom
they have been told has an inoperable brain tumor. There are several chapters
that deal with How To Find Help For Your Child, How to Tell if You Have the
Right Doctor, How to Tell if You Have the Wrong Doctor, and Networking to
Find the Right Doctor, as well as the emotions, frustrations, and joys of
being the parent of a child with special needs.
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MY HEART STORY
Written by a parent after her child's surgery experience, this book is
designed as a journal/memory book for the parent to keep while the child is
in the hospital for surgery. The pages have very cute borders and are child-
appropriate. Some are blank for pictures, others have lines for script. This
also helps to explain to the child, when they are ready, what they have
experienced.
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MATTY'S HEART
This book prepares children for open-heart surgery in a way that they can
understand. Kids With Heart families have purchased these since they first
became available and the children love it. It is also great for explaining
heart surgery to siblings, relatives, and teachers. This book is distributed
exclusively by Kids With Heart National Association for Children's Heart
Disorders.
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KID'S DISCOVER HEART-DEC. 1996
This is a children's magazine from the Kids' Discover series. It has
excellent diagrams of the heart and blood flow. It also includes articles
about healthy hearts and how to keep them that way.
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A NIGHT WITHOUT STARS
This book, designed for the adolescent facing open-heart surgery, is a story
of a10 year old girl who is facing open-heart surgery and the fears she is
dealing with. She meets a young boy near her age who is badly scarred from
burns and he helps her to face her fears by sharing his experiences with her.
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YOUNG PEOPLE & CHRONIC ILLNESS
Is it possible to live a happy life even though you have a medical problem?
Yes, and if you're wondering how, this book can tell you. It is designed for
adolescents and teens and is real stories written by young adults who
actually do have chronic illnesses themselves. Also included is a section to
help young people manage their illness, ways to help your doctor help you,
tips on telling your friends and classmates, advice on communicating with
your family, strategies for coping with school, suggestions for battling a
fear of hospitals as well as a section to help adolescents learn about
support groups and national organizations available for their illness.
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DR. MANI'S FONTAN REPORT
Worries that often nag parents of children who have had a Fontan operation
include uncertainty about the long term outcome and potential complications
they might face. This report, written by Dr. Mani-Sivasubramanian, M.D., a
cardiothoracic surgeon, is in non-technical language and seeks to calm these
worries and provide easily understandable information about the long term
outcome after a Fontan operation.
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JEFF'S NEW PACEMAKER
This book is designed to explain pacemakers to children. It explains the
hospitalization involved when having a pacemaker implanted, the function of
the pacemaker, as well as the difference it makes in how Jeff feels before
and after the surgery.
In association with Amazon.com
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The Parent's Guide to Congenital Heart Defects
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The Heart of a Child : What Families Need to Know About Heart Disorders in
Children
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Parent's Guide to Heart Disorders
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Pediatric Cardiac Anesthesia
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Cardiovascular Diseases : Genetics, Epidemiology, and Prevention (Oxford
Monographs on Medical Genetics, No 22)
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Adult Congenital Heart Disease
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Angiocardiography of Congenital Heart Disease
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Angiocardiography of Congenital Heart Disease
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Atlas of Congenital Cardiac Surgery (Surgical Practice Illustrated)
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Atlas of Two Dimensional Echocardiography in Congenital Cardiac Defects
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Atrioventricular Conduction in Congenital Heart Disease : Surgical Anatomy
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Basic Imaging in Congenital Heart Disease
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Brain Injury and Pediatric Cardiac Surgery
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Cardiac Imaging : X-Ray, Mr, and Ultrasound : Proceedings of the Nycomed
Scientific Symposium 1990 Held in Bergen, 8-9 October, 1990 (International C)
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Challenges in the Treatment of Congenital Cardiac Anomalies
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The Clinical Recognition of Congenital Heart Disease
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Color Doppler of Congenital Heart Disease in the Child and Adult
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Congenital Heart Disease
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Congenital Heart Disease (Atlas of Heart Diseases, V. 12)
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Congenital Heart Disease (Current Status of Clinical Cardiology)
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Congenital Heart Disease : A Deductive Approach to Its Diagnosis
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Congenital Heart Disease : A Diagrammatic Atlas
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Congenital Heart Disease : Causes and Processes
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Congenital Heart Disease : Echocardiography and Magnetic Resonance Imaging
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Congenital Heart Disease : Textbook of Angiocardiography
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Congenital Heart Disease Diagnosis and Management in Children and Adults
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Congenital Heart Disease in Adolescents and Adults (Developments in
Cardiovascular Medicine, Vol 136)
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Congenital Heart Disease in Adults
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Congenital Heart Disease in Adults : A Practical Guide Developmental Cardiology
: Morphogenesis and Function Developmental Mechanisms of Heart
DiseaseDiagnostic and Interventional Catheterization in Congenital Heart
Disease
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Echo, Morphologic Correlates : The Normal Heart (Series on Echocardiographic
Diagnosis of Congenital Heart Disease)
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Fetal and Neonatal Cardiology
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Fetal, Neonatal, and Infant Cardiac Disease
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The Genetics of Cardiovascular Disease
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Heart Disease in Persons With Down Syndrome
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Neonatal Heart Disease
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Noninvasive Imaging of Congenital Heart Disease : Before and After Surgical
Reconstruction
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Obstructive Lesions of the Right Heart
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The Pathology of Congenital Heart Disease : A Personal Experience With More
Than 6,300 Congenitally Malformed Hearts
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Pediatric Cardiac Surgery
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Pediatric Cardiovascular Imaging
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Physical and Technical Aspects of Nuclear Cardiology (Nuclear Medicine
Self-Study Program iii. Cardiology, Unit 1)
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Radiology of Congenital Heart Disease
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Reoperations in Cardiac Surgery
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Surgery for Congenital Heart Defects
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Surgical Treatment of Congenital Heart Disease
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Transcatheter Therapy in Pediatric Cardiology
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Transesophageal Echocardiography in Congenital Heart Disease
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Two-Dimensional Echocardiographic Atlas : Congenital Heart Disease Vol 1
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Two-Dimensional Echocardiography in Congenital Heart Disease
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Angiocardiograms in Congenital Heart Disease (Oxford Medical Publications)
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Atlas of pediatric two-dimensional echocardiography
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Cardiac Anesthesia for Infants and Children
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Cardiac catheterization and angiocardiography in severe neonatal heart disease
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Cardiac imaging : x-ray, MR, and ultrasound : proceedings of the Nycomed
Scientific Symposium 1990 held in Bergen, 8-9 October 1990
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Cell death in the morphogenesis and teratogenesis of the heart
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The Child With a Chronic Medical Problem-Cardiac Disorders, Diabetes,
Haemophilia (National Children's Bureau Bibliographies, 3)
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The Child with congenital heart disease after surgery
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Children with congenital intracardiac defects; a pictorial atlas of individual
somatic and neuropsychologic development before and after open heart surgery
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Color Atlas of Adult Congenital Heart Disease
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Color Atlas of Cardiac Surgery : Congenital Heart Disease (Wolfe Medical
Atlases)
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Congenital cardiac defects--recent advances
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Congenital diseases of the heart : clinical-physiologic considerations in
diagnosis and management
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Congenital heart disease
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Congenital Heart Disease (What the Doctor Didn't Tell You About)
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Congenital Heart Disease : Morphologic Echocardiographic Correlations (Modern
Paediatric Cardiology)
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Congenital Heart Disease After Surgery : Benefits, Residua, Sequelae
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Congenital malformations of the heart : embryology, anatomy, and operative
considerations
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Coronary arterial variations in the normal heart and in congenital heart
disease
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Current paediatric cardiology
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Current problems in congenital heart disease
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Echocardiographic Diagnosis of Cardiac Malformations
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Echocardiographic diagnosis of congenital heart disease
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Echocardiography in congenital heart disease
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Etiology and morphogenesis of congenital heart disease
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First Clinical Conference on Congenital Heart Disease
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Important topics in congenital, valvular, and coronary artery disease
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Infant and child care in heart surgery : clinical manual of the Department of
Cardiovascular Surgery,
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Children's Hospital Medical Center, Boston, Massachusetts
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Magnetic Resonance Imaging of Congenital Heart Disease : Anatomic,
Angiographic, and Echocardiographic Correlations
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The management of neonates and infants with congenital heart disease
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Mechanisms of cardiac morphogenesis and teratogenesis
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Morphogenesis and malformation of the cardiovascular system
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Morphology of Congenital Heart Disease : Angiocardiographic, Echocardiographic,
and Surgical Correlates
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Neonatal heart disease
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The Neonate With Congenital Heart Disease (Major Problems in Clinical
Pediatrics ; V. 5)
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On malformations &c., of the human heart, with original cases
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The Operative and Post-Operative Management of Congenital Heart Defects
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Paediatric Cardiology Vol 5
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Paediatric cardiology, 1977
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Pathology of Congenital Heart Disease
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Pathophysiology of congenital heart disease; proceedings of a conference held
July, 1967
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A perspective on new techniques in congenital and acquired heart disease
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Plain film interpretation in congenital heart disease
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Postoperative congenital heart disease
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The pulmonary and bronchial circulations in congenital heart disease
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Radiology of Congenital Heart Disease
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Radionuclide scanning in cyanotic heart disease
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Second Clinical Conference on Congenital Heart Disease
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Septal Defects : Atrial and Ventricular
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Surgery for Congenital Heart Defects
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Surgical treatment of congenital heart disease
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Tetralogy of Fallot Truncus and Arteriosus
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Vectorcardiography in congenital heart disease; a method for estimating
severity
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The X-ray diagnosis of congenital heart disease in infants, children, and
adults : pathologic, hemodynamic, and clinical correlations as related to the
chest film
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Part I - Survival Guide for the Hospital Roller Coaster: Two Mothers' Stories
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Part II - Sacrifice for Life - Sequel for Survival
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Part III - Building a House
Kim Russell is the author of In a Heartbeat: A Baby's Heart, A Surgeon's Hands, A Life of Miracles
She is on the ACHA Board of Directors as well.
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